One of the most frustrating things is that nobody teaches you how to be disabled.
Everybody teaches you how to try to get better, how to blend in, how to be as normal as possible and “lead a fulfilling life.”
But nobody says the important shit.
There is no
“Hey, fuck, you’re in a wheelchair and that just sucks balls, but you know what? You gotta fucking do it so here’s some things to make life easier.”
Or “Here’s your new cane! Congrats! Here’s how you use it. Stairs might fuck you up at first but let me show you how to make it easier.”
Or “Hey, you’re autistic, that’s cool. Let me know how I can help as your friend/family. I care.”
No one teaches you, actually teaches you about how to deal with daily life moving forward.
Once you’re disabled, once people know or once you’re injured or sick or diagnosed or whatever,
it’s all about pushing to get out of the chair, to stop using the cane, to blend in.
There is no help to accept your disability and move on with life working with it.
It’s always a push to work against it in every way possible and that makes it even more exhausting.
God, this! It’s always about trying to ignoring and deny our disability or giving up on us completely.
It’s like disability is the ultimate failure, even if they won’t say it.
No one tells you how to make accommodations or what accessibility problems you’ll face.
Disabled people can have quality lives.
But our lives are going to be different from abled people’s.
Our health is going to be different. And so should our healthcare.
But instead we are given the same treatment tailored to abled people, and that means it is going to fail us in so many ways.
This is also why “cure” culture bothers me.
Because if there’s no cure, doctors give up. It’s like no cure = no available treatment, because why try if we can’t get you back to abled standards?
[caps removed and spaces added for accessibility]
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